We had another visit with Dr C and Linda the social worker today. An appointment at the medical office this time - drat! I was beginning to look forward to those lunch meetings, instead. Anyways, we sat and chatted, the four of us, for what seemed like an hour. Of course they touched upon all the pertinent questions of how we were doing and what was changing physically for me. But, I had a nice time with plenty of laughs and joking around, all that was missing was a cafe table, drinks and a waiter. It is so ironic that we go to these palliative care appointments and I have such a good time.
I do have a bit of good news to share but I do have to temper it afterwards; at the conclusion of our meeting, Dr C shared that I was doing very well and the progression has been slower than he expected. Wonderful news, the first bit of positive news regarding the disease since the diagnosis 10 months ago. Much as we enjoyed hearing this, however, Kathy and I are cautious. As I mentioned previously, I present well: I smile, stand straight, speak clearly and move about normally. I fool most and I wonder if I may have tricked Dr C a bit. Because, inside I feel the decline and it has been steady, more than my exterior reveals.
That said, it is good news because it is a reminder of how well I am doing. Back in spring I was expecting to be in a wheelchair by now. I was wondering then if I was going to make it to the Baja mission. Making it to the opening of the hospital this Dec 1 was also doubtful back then. So, all in all, although I am much weaker now there is much to celebrate; I am doing much better than I ever dared to imagine.
Thank you all for your prayers - God hears you; I am humbled by your love, thoughts and support. I am ever so grateful.
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